Friday, September 23, 2011

Why I am walking in the CCFA Take Steps Walk…

As some of you know I have had some issues and have been working with my doctor to resolve them (this may be a little TMI for some people so if you don’t want to know this part of me I suggest you stop reading now.) I while ago I posted a blog about My Struggle with Food, where I touched on some of my issues. But first let me say a little about the walk itself.


The Crohn’s and Colitis Foundation of America (CCFA) raise awareness and funds to help with the fight against Inflammatory Bowel Diseases (IBD) which include Crohn’s Disease and Colitis. Now there are over 500,000 people that suffer with IBD, roughly half with Crohn’s and half with a form of Colitis. What I have read it is rare for these diseases to cause colon cancer, but the more severe forms may make you more susceptible. These diseases affect people’s everyday life making it difficult to do everyday things. I suggest checking out their website for more information. I am new to this and am still learning.

On to my personal reason…I have been diagnosed with colitis, I was just tested for Crohn’s the other day and have not heard the results from that yet. (My next appointment is in November.) I have had internal issues for as long as I can remember but it didn’t get really bad until my third trimester with my son. My first doctor made me feel like he didn’t care and that everything was normal. Well I didn’t get better after I had my son, I would go a month or two with no symptoms then I would have really bad flare ups. So I decided to get another option. I ended up going to Johns Hopkins Gastroenterology (GI) Division, and have been super pleased. I really like my doctor, he really takes the time to listen and explain things. Since I have been going there I have had a lot of blood work done to test all sorts of things (some numbers came back low but now low enough to be too concerned) and have had a colonoscopy. The original prognosis was that I had proctitis which is a form of colitis that only affects the lower part of your colon (rectum) but the colonoscopy showed inflammation much higher. I was actually showing inflammation around my appendix, which is why, just to be safe and hopefully rule out, they are testing for Crohn’s. I am currently taking four types of medication, to hopefully make me go into remission, once I am symptom free we will work on maintaining that. But it will come and go forever, and the worse thing is that it is hereditary which means there is a pretty large chance my son is going to end up going through everything I am and possibly worse.

I have walked in many charity walks but I usually have only known or known of people that were affected by which ever charity. Be it for cancer, autism, MS or even premature babies. This time I am the one affected, so this is really different for me. So if you read this and can help with the cause, even if it is just one dollar ($1.00), I would personally really appreciate it.

You can go to my personal page by clicking the link http://online.ccfa.org/goto/Choy